|
Press
Release
9/16/05 |

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For more
information, contact:
Ron & Sharon
Oberleitner
Alison Singer
AutismCares™
Autism Speaks
(888)
355-7161
(212) 252-8540
CHILDREN wITH AUTISM AFFECTED BY KATRINA
FINDING HELP THROUGH
AUTISM LEADERSHIP
ORGANIZATIONS
AUTISM
COMMUNITY RALLIES TOGETHER TO FORM
AUTISMCARES
BOISE,
IDAHO
– September 16,2005 – More than 10
national autism leadership organizations have come
together to form AutismCares, a nationwide disaster
relief effort that will potentially assist thousands of
Katrina families living with autism.
To
address the most immediate needs, ”AutismCares –
Katrina” is coordinating support for the unique
needs of families affected by
autism through facilitating temporary / permanent
relocation support, mobilizing specialty assistance
teams and providing autism-conscious supplies directly
to these families and the
professionals caring for them.
“The catastrophic impact of Hurricane
Katrina
on families affected by autism exceeds the need for basic necessities of
food, clothing and shelter. with the loss of order and
the chaos surrounding this disaster, children and adults
affected by autism are experiencing a pain
that is nearly indescribable”, said
Mark Roithmayr, President
of Autism Speaks which is serving in a
leadership role in AutismCares. “The
autism community has always rallied to take action and
to care for one another. AutismCares is yet another
supreme and valiant effort to ensure that families get
the care and basic services they so desperately
need.”
Autism
is one of the fastest growing, most prevalent childhood
disorders in the
United States
, affecting as
many as one in every 166. Autism is a
neurodevelopmental disorder that interferes with normal
development in language, intuitive thought,
social interaction and an ability to connect with a
person’s surroundings. Approximately half of all
children with autism are unable to communicate their
needs using spoken words. Most are unable to
accommodate for changes in their daily routines.
Associated problems include hyperactivity,
self-injurious behavior, and sleeplessness. Order
and consistently administered therapeutic interventions
are critical to the affected child's and family's well being.
According
to Katrina victim, Sheila L. Ealey, her six-year-old son
has regressed significantly since Katrina hit.
"
Temple
was receiving extensive
behavioral and biomedical therapies and was doing so well. He was mainstreamed with an aide half day in
a regular kindergarten with intensive services in the
afternoon. He is now flapping, stimming, banging his
head, hitting me, crying and making strange noises.
It's so sad to see all of the work that has gone
into the last four years for him leave within a week of
being without therapy and his familiar
surroundings."
To
address long-term needs, AutismCares will advocate and
implement proactive rehabilitation and assistance
programs in an effort to help these families begin to
rebuild their lives. AutismCares effort will be
collaborating with officials from relief agencies
including the American Red Cross and Salvation
Army.
The following
links have been established:
AutismCares web Site -
Objectives
of the initiative, partners of the coalition, newsroom with contact information.
Victim's
Assistance - Families dealing with autism needing help
(coordinated within Unlocking
Autism).
In-kind Donations - May include transportation,
accommodations in a home, therapy, respite, or products
for care packages. All requests will be followed
up by an advocate.
Specialty team
volunteers –
Possibly go down to
Katrina-affected areas if needed.
Donations
- Collections go
to the current autism disaster relief effort (collected
by Cure Autism Now).
"We
are so lost as a family," Ealey said . "I
grew up in New Orleans
, raised an older daughter there and now am raising my three youngest
ones. I had dedicated the last two years to
developing and financing a school for autistic children, which ironically was to begin the day Katrina stormed
through. My heart is broken. My husband and
I have felt very alone as we desperately began
looking to relocate our family permanently.
I am grateful for the kindness being
offered through AutismCares."
Autism
leadership organizations participating in the relief
effort through AutismCares include: